10. Danielle Faour

6 Oct

 

Danielle Faour is no ordinary girl. In spite of a debilitating condition she is a very positive person and engaged in lots of things, including pursuing her passion which is music. At the age of two, she was diagnosed with a rare blood disease called Evans Syndrome. Evans Syndrome is an autoimmune disorder in which antibodies attack red blood cells and platelets.

Danielle attended Our Lady of Mercy College,Heidelberg. Her condition greatly affected her schooling, making her sometimes miss months of schooling at a time due to being in hospital and recovering at home. This meant that she would have a lot of catch up homework to do. Despite missing two of her Year 12 exams as she had to be hospitalised at the time,  she excelled at her VCE Music Performance Exam scoring an A+.

Knowing that she couldn’t participate in some of her dancing classes or school sports, Danielle knew singing was something her body would always allow her to do. Her mum also loves to sing and goes to karaoke at least twice a week. She is also in a volunteer entertainment group who sings to the elderly.

Danielle is now 18 and is studying an Advanced Diploma of Music Performance at the Box Hill Institute of TAFE. Since her diagnosis Danielle spent a lot of time in and out of the Royal Children’s Hospital. Now that she is 18, she can no longer be treated there. The Royal Children’s Hospital was Danielle’s second home for 16 years. Danielle is very grateful to the Royal Children’s Hospital for everything they did for her. To thank the hospital Danielle recorded a “Thank You CD” with three songs on it. The CD sold five hundred copies and the proceeds of $6,000 went to the Royal Children’s Hospital’s Good Friday Appeal.

This year Danielle’s story was featured on Channel 7’s Good Friday Appeal Telethon with her singing Cyndi Lauper’s True Colours. She was also on the Herald Sun’s Website with her version of True Colours played in the background of a photo slide show of a number of children treated at the hospital over the years. She has sung live at a number of hospital functions and at the invitation of radio personality Denis Walter, performed at a charity Christmas In July fundraiser for Father Bob Maguire.

Besides singing, Danielle loves to perform in musicals. Recently she was in the ARC Theatre’s production of “Grease”. At school she performed in school musicals such as “The Wiz” in which she played the role of Glinda the Good Witch and in “Fiddler on the Roof”, playing the role of Hodel. Danielle also likes to make jewellery for friends and family in her spare time. For now, she is keen to pursue her music studies and her involvement in the Royal Children’s Hospital ChIPS program (Chronic Illness Peer Support).

In the future, Danielle hopes to be able to do something with her music as a career, whether it is being a singing teacher or a music therapist. She would also like to work with animals that are mistreated. She wishes to help care for mistreated elephants inThailandin rescue and rehabilitation centres there.

To people suffering from chronic illness Danielle says, “You can do anything you want to! You are not your illness; don’t let it take over you or your life. Things may take a little longer and it may not be easy but you will get there eventually.” Danielle’s positive attitude and her determination not to let illness stand in her way is an inspiration, not just to Evans Syndrome sufferers, but to all of us.

Renee Mc Dowell

Advertisements

One Response to “10. Danielle Faour”

  1. rhonda beech October 7, 2011 at 1:11 pm #

    danielle sounds like an amazing young girl, who would be a wonderful music therapistn and mentor,.what a lovely photo.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: